ME/CFS and Lyme Association of WA, Inc.

WELCOME TO THE ME/CFS SOCIETY OF WA

Whether you are a person with ME/CFS, a caregiver, medical professional or simply curious to know more, we hope that the resources you find here will contribute to your understanding of this debilitating disease and provide information about the services and activities we offer.
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13/9/2016: Naturopath Serena Kay talk on Saturday 8 October 2016
12/9/2016: Naturopath Samantha Smith talk on Thursday 29 September 2016
06/9/2016: University of WA Research - Participants required
21/7/2016: ME/CFS research presentation with NCNED Griffith University researchers
19/5/2016: Millions Missing
21/5/2016: Helping raise public awareness
21/5/2016: News from the Senate Inquiry
09/5/2016: Thanks to everyone helping support us in the HBF Run for a Reason 2016
08/5/2016: We will host a screening of this fabulous documentary on ME/CFS on Thursday May 12th at 7:00 pm at the Niche
27/1/2016: Professor Paul Fournier from UWA will present his latest research and study projects into the cause of CFS and Fibromyalgia
29/5/2015: Next Members meeting: June 6, 2015 at 2pm
28/10/2014: The ME/CFS Society of WA will host a community DVD screening of the long awaited documentary Under Our Skin 2: "Emergence” on Saturday 6th December 2014 at the Niche.
04/10/2014: Ben Horgan will give a talk entitled "Using a lived experience within the health system to drive change through collaboration"
06/9/2014: UWA honours student Patrick Nay will discuss Muscle Fatigue and oxidative stress in CFS, and discuss the latest UWA research.
02/8/2014: Physiotherapist Melanie Galbraith will speak on Managing Pain and Fatigue
05/7/2014: Special General Meeting - Saturday July 5th at 1:30 pm
05/7/2014: Dr. Nick Sheldrick will give a talk entitled ‘Chronic Fatigue and Fibromyalgia - The postural perspective.’ at 2:30 pm
07/6/2014: Clinical Psychologist Mary Roberts will give a talk entitled ‘Exploring the links between disturbed sleep and persistent pain: How to improve the quality of your sleep.’
17/5/2014: International Lyme Disease Awareness Day: Saturday 17 May 2014 from 11 am until 4 pm at the Perth Cultural Centre
05/4/2014: Cooking while on a restrictive diet.
01/3/2014: SO, YOU HAVE A (PAIN) SYNDROME!
08/2/2014: Kay Brand PhD to give a talk on Fibromyalgia.
02/11/2013: Annual General Meeting 2 November 2013
05/10/2013: Showing of the documentary about Lyme Disease in Australia"Invisibly Ill - A Stealth Reality"
11/5/2013: The Perth protest will be held at the Perth Cultural Centre at the James Street Amphitheatre between the State Library and PICA on Saturday 11 May from 12 pm to 2 pm.
06/4/2013: an informal meeting to meet others and get some personal support
12/4/2013: A rare opportunity to raise much needed funding.
23/3/2013: Chrysalis Youth Support Group meeting
02/3/2013: Under Our Skin Public Screening
Support Group Meeting March 2013. Topic: Lyme Disease
16/2/2013: Chrysalis Youth Support Group meeting
02/2/2013: Support Group Meeting Feb 2013. Topic: Member discussion
03/11/2012: Dr. Derham DVD
11/10/2012: AGM with keynote speaker Dr. Hugh Derham.
05/7/2012: See our Facebook page for current news
21/8/2010: Dr. Byron Hyde lecturing in Perth in September 2010!!!
23/6/2010: ME/CFS breakthrough - Hydrogen sulfide as a central mechanism
01/12/2009: Fundraising to bring Dr. Byron Hyde to Australia in 2010.
02/6/2009: Probiotics and emotional symptoms
02/6/2009: UK's Daily Telegraph Reports Breakthrough
29/5/2009: Medical Mystery ME/CFS solved
04/4/2009: IACFS Conference Report March 2009
08/4/2009: Probiotic may ease fatigue syndrome anxiety
01/4/2009: Basal salivary cortisol levels and symptomatology associations

02/4/2009: Report on the 2009 IACFS/ME Conference
06/4/2009: Aluminium body burden and ME/CFS
06/4/2009: Probiotics and emotional symptoms
29/3/2009: Southern Cross University seeking research particpants
22/2/2009: The Economic Burden of FM: A comparative study with rheumatoid arthritis
17/2/2009: The Pacific Fatigue Lab and Chronic Fatigue Syndrome (ME/CFS)
12/2/2009: CDC's Empirical Definition Further Discredited
05/2/2009: Press Release: Test for ME/CFS Dr Sarah Myhill
05/2/2009: Dr Myhill: Mitochondrial Dysfunction .pdf
05/2/2009: Preview of the NICE Judicial Review.

05/2/2009: US CDC CFS Promotion
20/1/2009: ME/CFS and Mitochondrial Dysfunction
13/1/2009: Coenzyme Q10 distribution in FM
11/1/2009: Chiropractic management of FM: Systematic literature review
05/1/2009: Low Cortisol in FM
01/1/2009: Normalization of leaky gut in ME/CFS
17/12/2008: Treat ME properly: The Times (UK)
14/12/2008: Restless Legs Syndrome Common Among FM Patients
14/12/2008: Dr. Suzanne Vernon, PhD: Live Chat
14/12/2008: Blood test for ME/CFS only 12 months away
11/12/2008: Mum suspect of killing ME daughter
05/12/2008: CFIDS Association Research Grants Raise Hope
03/12/2008: UK ME Association Survey
30/11/2008: Invest in ME International ME/CFS Conference 2009
24/11/2008: Layne's World: Recovering from CFS
18/11/2008: Aluminium Body Burden and CFS
17/11/2008: Irish Medical Journal: Work Assessment protocol
11/11/2008: A Case Definition for Children with ME/CFS
25/10/2008: Serum antioxidants and NO levels in FM
25/10/2008: Ventricular cerebrospinal fluid lactate raised in ME/CFS
14/10/2008: Summary of the Viruses in ME/CFS conference, Baltimore 23/06/08
11/10/2008: New treatment options for FM
10/10/2008: Calgary Herald: Tired of being misunderstood
21/10/2008: Wisconsin CFS Assn changes name
16/10/2008: Brain SPECT Perfusion Abnormalities in FM
05/10/2008: Evidence of Inflammatory Immune Signaling
01/10/2008: Evidence of Inflammatory Immune Signaling in CFS
01/10/2008: International ME/CFS Conference Italy September 2008
29/9/2008: Construct validity of chronic fatigue syndrome
29/9/2008: Negotiating the diagnostic uncertainty of contested illnesses
26/9/2008: POTS is an under-recognized condition in ME/CFS
20/9/2008: Is ME/CFS caused by dysregulation of hydrogen sulfide metabolism
20/9/2008: Website supports legal action against NICE
14/9/2008: Anaesthesia for MCS and ME/CFS.
14/9/2008: A hormonal origin for ME/CFS?
10/9/2008: Genetic issues associated with ME/CFS
09/9/2008: Is pregabalin a safe and effective treatment for fibromyalgia?
08/9/2008: Effectiveness of antidepressants treatment for fibromyalgia
08/9/2008: M.E. Society of America Web Site Updates
05/9/2008: Acupuncture treatment for fibromyalgia
04/9/2008: Tissue Bank Pilot Study Launched in UK
04/9/2008: Edinburgh Evening News: Time to wake up to ME
02/9/2008: ABC's "Very Small Business" Series Makes Light of ME/CFS
01/9/2008: The effectiveness of hydrotherapy in the management of fibromyalgia syndrome
26/8/2008: Etiology of fibromyalgia: The possible role of infection and vaccination.
23/8/2008: Call for Papers: 9th International IACFS/ME Conference
19/8/2008: Disruption of cognitive function in Fibromyalgia Syndrome
19/8/2008: Iodine deficiency, more than cretinism and goiter
29/8/2008: Society President Interviewed on 6PR
20/8/2008: Society President Runs City2Surf Helping to Raise Awareness
17/8/2008: Relaxation and guided imagery for fibromyalgia
17/8/2008: Dr. Pellegrino on Motherhood and Fibromyalgia
16/8/2008: Zombie Science in ME/CFS?
07/8/2008: Increased oxidative stress suggested by low serum vitamin E concentrations
25/5/2008: Federal Health Minister's Unhelpful Response
05/8/2008: Washington Post: Lost in a system where doctors don't want to listen
05/8/2008: Obstructions for quality care experienced by ME/CFS patients
05/8/2008: Medical Student Attitudes to Unexplained Diseases
03/8/2008: 3rd Article in Pacing Series now available at CFIDS/FM Self-Hel
28/7/2008: Suggestions to minimize symptoms from the US Dept. of HHS
19/7/2008: Small heart syndrome identified in CFS
20/7/2008: Cancelled: Family and Carer Information Evening 6th Aug 2008
20/7/2008: Society Office Opening Hours
20/7/2008: Dr Mark Donohoe: Presentation Slides & Audio
18/6/2008: The Age 17 June 2008: "So very tired"
10/6/2008: Dr. Charles Lapp Article: "Why Do Some People Not Get Better?"
29/6/2008: CFIDS/FM Self-Help: "Pacing: What It Is & How to Do It"
16/6/2008: Economist explores ME/CFS beyond current medical dogma
08/6/2008: US CDC hints ME is different to CFS
10/5/2008: Report: International Conference on ME/CFS Biomedical Research, Cambridge.
17/7/2008: UK RCGP removes mental health classification
07/7/2008: Pacing Article by Dr. Bruce Campbell, Ph.D.
04/7/2008: Identification of Marker Genes for Differential Diagnosis of ME/CFS
28/6/2008: How biological abnormalities separate CFS from depression
25/6/2008: Sleep disturbances in fibromyalgia syndrome
09/7/2008: Neuropsychological Performance in ME/CFS
14/5/2008: Energy Envelope Theory and ME/CFS
16/7/2008: Energising Biomedical Awareness Conference DVDs
16/7/2008: Baseline cortisol predicts treatment outcomes
16/7/2008: How science can stigmatize
16/6/2008: Leaky gut found in Fibromyalgia
12/6/2008: Dynamics of sleep stage transitions in CFS
09/6/2008: Inflammation in Patients with Fibromyalgia
10/6/2008: Feldenkrais Method classes by Brigit Cosgrove
28/5/2008: Pregabalin effective for fibromyalgia
26/5/2008: Dr. Paul Cheney on Oxygen Toxicity
26/5/2008: Trace element levels and fibromyalgia
25/5/2008: Vitamin D Inadequacy in Patients with Chronic Pain
23/5/2008: BMJ: CFS in Children Aged 11 Years and Younger
18/5/2008: ME Association (UK) Survey
17/5/2008: Channel 10 David and Kim ME/CFS Feature
21/5/2008: Obstructions in quality of care experienced by ME/CFS patients
16/5/2008: Exercise for Fibromyalgia: A Systematic Review
15/5/2008: Sleep structure in ME/CFS and FM
14/5/2008: Pregabalin use for fibromyalgia
14/5/2008: Diagnosis and treatment of vitamin D deficiency
13/5/2008: AFME/AYME Member Survey Results 2008
11/5/2008: The Economist: The Root of Chronic Fatigue
11/5/2008: Gene Expression Subtypes in ME/CFS.
11/5/2008: Understanding Pain and Fatigue in FM
07/5/2008: The Guardian: 'What it really means to be healthy'
07/5/2008: BBC News UK: 'Seven genetic types of ME found'
05/5/2008: 'Killing Us Softly' by Dr. Mark Donohoe online and free
30/4/2008: Exercise limits and post-exertional malaise
29/4/2008: Dr Donohoe Treatment Workshops: Friday 9th May
29/4/2008: Psychological impacts of ME/CFS
29/4/2008: Sophia Mirza: Website and tribute
24/4/2008: Cytokine dysregulation affects inflammatory characteristics
24/4/2008: Dr. David Bell: Is ME/CFS a Mitochondrial Disease?
23/4/2008: Digestive disorders and fibromyalgia
22/4/2008: Testing the single syndrome hypothesis
19/4/2008: IiME International Conference: Sub Grouping and Treatments
19/4/2008: Dynamics of sleep stage transitions in people with ME/CFS
15/4/2008: Royal Society of Medicine conference critisised by GP
20/3/2008: Unravelling intracellular immune dysfunctions in ME/CFS
15/4/2008: Economic impact of ME/CFS: individual and societal costs
10/2/2008: Post-infectious fatigue syndrome in dengue infection
01/12/2007: 2007 AGM on Saturday 1st December
08/12/2007: Saturday 8th December Treatment Workshop: Overview of Treatment Protocol.
05/4/2008: Saturday 5th April Treatment Workshop: Approaching Treatment and Gut Repair
01/3/2008: Saturday 1st March Treatment Workshop: Sleep Management and Pacing
09/2/2008: Saturday 9th February Treatment Workshop: Chelation and Elimination Diet
03/11/2007: World leading ME/CFS experts visit Perth
10/4/2008: Society sends further reminder to Federal Health Minister
29/5/2007: State Health Minister responds to our letter of 11th May
11/5/2007: Society writes to State Health Minister
09/4/2008: Biomedical Research Conference 6th May UK
09/4/2008: University of Iowa study reveals pain and fatigue link
08/12/2007: Federal Health Minister acknowledges receipt of our letter
01/11/2007: Society Sends Reminder Letter to Federal Health Minister
23/8/2007: Society Writes to Federal Health Minister
07/4/2008: Multidisciplinary Treatment for Pain: Interventions & outcomes review
07/4/2008: Campiagn for USA to Adopt Canadian Guidelines
01/4/2008: Spiritual Healing Proves Ineffective
03/4/2008: Alterations in Diurnal Salivary Cortisol Rhythm
24/3/2008: Satellite Conference on Viruses in ME/CFS
24/3/2008: Support for psychiatrically biased conference unacceptable
21/3/2008: Inflammation and arterial wave reflection in patients with chronic fatigue syndrome
20/3/2008: Dr K Holtorf: Cortisol may alleviate for chronic fatigue syndrome and fibromyalgia
20/3/2008: Predictors of physical functioning and psychological distress
18/3/2008: Dr Jonathan Kerr's latest research raises hopes of finding a biomaker for ME/CFS
16/3/2008: Possible role for early-life immune insult including developmental immunotoxicity in chronic fatigue syndrome (CFS) or myalgic encephalomyelitis (ME)
10/3/2008: Gulf War illness linked to chemical exposure
16/2/2008: Analysis of Peripheral Blood Mononuclear Cells from Patients with Chronic Fatigue Syndrome
16/2/2008: Intracellular immune dysfunction in ME/CFS: state of the art and therapeutic implications.
23/2/2008: A new blog to discuss adopting the Canadian ME/CFS in the U.S.
09/10/2007: Chronic fatigue syndrome is associated with chronic enterovirus infection of the stomach
03/2/2008: A matched case control study of orthostatic intolerance in children/adolescents with chronic fatigue syndrome.
15/2/2008: Specific correlations between muscle oxidative stress and chronic fatigue syndrome: a working hypothesis.
06/3/2008: Sleep stage dynamics in fibromyalgia patients and controls
19/1/2008: Inflammation, immune function, and neuroendocrine interactions
05/3/2008: A Kid's Guide to Surviving and Succeeding in School With CFS & FMS
05/3/2008: New Horizons 2008 - International Conference on ME/CFS Biomedical Research
02/2/2008: New Pediatric Case Definition Helps Pediatricians Diagnose Chronic Fatigue Syndrome (ME/CFS)
04/2/2008: Diminished Cardiopulmonary Capacity During Post-Exertional Malaise
14/2/2008: Science and Legal News on Postexertional Malaise
09/2/2008: Nine-Year Follow-Up of Danish Chronic Fatigue Syndrome (CFS) Patients Impact on Health, Social, Vocational, and Personal Lives
26/11/2007: Identity and coping experiences in Chronic Fatigue Syndrome: A synthesis of qualitative studies
05/12/2007: Alterations in intestinal microbial flora and human disease
08/12/2007: Seven genomic subtypes of Chronic Fatigue Syndrome / Myalgic Encephalomyelitis (CFS/ME): a detailed analysis of gene networks and clinical phenotypes
07/1/2008: Update CFS/ME NICE Guidelines Judicial review
12/12/2007: Normalization of the increased translocation of endotoxin from gram negative enterobacteria (leaky gut) is accompanied by a remission of chronic fatigue syndrome
11/1/2008: Psychologists criticise NICE guidelines for those with Chronic Fatigue Syndrome [UK]
21/7/2007: You are invited to visit the National Fibromyalgia Associations (NFA) New website
10/1/2008: Rosamund Vallings on New Zealand Honours List 2008
16/1/2008: Chronic fatigue syndrome in children aged 11 years old and younger
All News
What is ME/CFS?
Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a complex chronic disease affecting multiple body systems/organs with the potential to cause devastating disability.

The disease is generally referred to as ME/CFS, but other commonly used names are Post Viral Fatigue Syndrome (PVFS), Post Infectious Fatigue Syndrome (PIFS) and Chronic Fatigue Immune Deficiency Syndrome (CFIDS).
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Living with ME/CFS
The chronic, persistent and poorly understood nature of ME/CFS may diminish the quality of medical and social support available to those affected.

Combined with potentially devastating physical disability, those affected and their carers may find themselves confronted by a unique and bewildering range of challenges.
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Naturopath Samantha Smith talk on Thursday 29 September
Naturopath Samantha Smith will give a talk on the topics of the microbiome, dysbiosis and chronic fatigue.
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